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My first born son, Trent Shulman, was delivered via an emergency C-section at Tufts in Boston at 23 weeks 6 days weighing 1lb 10oz. My labor was stopped once at 23 weeks 3 days which thankfully allowed for me to receive steroid injections, and for my husband to urgently fly home from India for work to witness the birth of our son. We were told that even with steroids, Trent had less than a 10% chance of surviving the next 72 hours.

Prior to going into labor, I had an easy pregnancy. My anatomy scan showed a healthy baby boy. On Day 3, we were devastated to find out that Trent had severe bilateral Grade 4 brain bleeds. This lessened his odds of survival even more. He also had BPD, broken ribs, failing kidneys, jaundice & PDA that caused continuous complications. We lived minute to minute, not knowing if he would survive. He developed hydrocephalus & had ETV/CPC neurosurgery on his due date. He had emergency eye surgery 2 days later for stage 1 ROP that quickly developed into stage 3 with plus disease. He came home exactly 14 days after his due date. 126 days in 3 different Boston area NICUs. He came home on O2 for 6 weeks.

My husband & I were asked on numerous occasions to stop intervention, but Trent never quit, so we never quit. He’s a true fighter! He’s quadriplegic, non-verbal, legally blind, and he’s severely disabled due to Cerebral Palsy. He receives numerous specialized services, and he has a vast medical team. This year he started middle school in our public school system, where he’s primarily in the PACE classroom. He’s the happiest kid I know!!